The Transplant Experience Journal is a collection of stories, pictures, and personal experiences from families about what it has been like to have a liver, kidney, heart, or lung transplant. It represents the “collective wisdom” of these families as well as their health care providers. A group of parents and health care providers has reviewed all of these contributions for appropriateness.
A note about color-coding: We have color-coded the transplant stories, so that if you are interested in reading narratives related to a particular organ you are able to do so easily. Heart transplant stories appear in red, kidney transplant stories in yellow, liver transplant stories in green, lung transplant stories in blue and multivisceral transplant stories in purple. This color code is displayed on each chapter for your reference:
HEART LUNG LIVER KIDNEY MULTIVISCERAL
We welcome family members to enter and explore the Transplant Experience Journal.
The Journal has the following chapters:
The Transplant Experience Journal was created by Boston Children’s Hospital, in collaboration with the University of California, Los Angeles.
We know that there may be some emotional discomfort associated with reading the stories of children and parents describing their experience dealing with transplant. Nonetheless, we hope that families learn from the stories of others facing similar experiences. The goal of the Transplant Experience Journal is to facilitate the strength and resiliency that lies in every child and family facing adversity.