The Cardiac Experience Journal is designed to promote the healthy coping of children and their families who must contend with significant pediatric heart disease.

The Experience Journal is a collection of stories, pictures, and personal experiences from families about what it has been like to live with their children’s heart disease. It represents the “collective wisdom” of these children and their parents as well as their health care providers.

We welcome family members to enter and explore the Experience Journal.

The Journal has the following chapters:

Click here to read the Experience Journal Safety and Feasibility Studies

We know that there may be some emotional discomfort associated with reading the stories of children and parents describing their experience dealing with heart disease. Nonetheless, we hope that families learn from the stories of others facing similar experiences. The goal of the Cardiac Experience Journal is to facilitate the strength and resiliency that lies in every child and family facing adversity.