Information for Families

Sophie’s Science Project: What is Medical Research

This comic book was developed with the goal of educating children about medical research. Please feel free to download this comic book and share it with children.

Children's Hospital Interactive Guide to Medical Research

The purpose of this Guide is to help parents ask questions and gather information that can help them decide whether or not to allow their child to participate in research. The website includes a video overview of several topics related to medical research. To view the video presentation, click on the "View Video Presentation" button located on the left side of the screen. If you would like to read about these topics, click on the headings at the top of screen.

National Institutes of Health Web Site For Parents On Medical Research Studies For Children

The purpose of the website is to provide information for families that includes the following topics:

  • Why is research important, how is it different, safety and protections, are there benefits, your right to say no

  • Information on the research team, what you might need to ask, and what role kids play in participating

  • Information on how studies affect the family and what kids think, what happens if you leave a study or what happens when it ends

  • Know what rights you have, where to find information, and terms that you may hear in a study

Children's Hospital Clinical Research Bill of Rights

Children's Hospital is committed to respecting and protecting the rights of its patients and families. We strive to provide care that is sensitive to cultural, racial, religious and other differences. This bill of rights provides information about our commitment to you, and your responsibilities as a member of your child's health care team.

Clinical Research Bill of Rights

Find a Clinical Trial

Families, patients and health care providers can search for clinical research trials conducted at Boston Children's Hospital:

Feedback from Families

We welcome your feedback and suggestions. If you've had a good experience with research or would like to see some improvements. Your submission will remain anonymous.