• Welcome to the updated Experience Journal website. Come on in and look around!
  • Recently completed: an update to our Transplant EJ
  • Coming soon: a new EJ about living with Vascular Anomalies.



The Experience Journal is designed to promote the healthy coping of children and their families who must contend with significant physical and emotional illnesses.

The Experience Journals are collections of stories, pictures, and personal experiences from families about what it has been like to live with their children’s illnesses. They represent the “collective wisdom” of these children and their parents as well as their health care providers. We welcome family members to enter and explore any or all of the Experience Journals.

The following Experience Journals are available: