For the first year, or I’d say ten months, he was fine. He did great with it, but then he started having issues about ten months after the surgery. He had accidently created a false passage, and that was hard because he had to go in for a minor procedure: the doctor had to go back in, put the cath in surgically, and let the false passage heal. That was a long road because he had a hard time for a long time after that, cathing through the stoma. If we couldn’t get it in, we would run to the doctor’s office and the nurses would put it in for him. It was happening a lot, I’d say every other week or so we were running in, for months. It was hard.
It affected everybody. He missed a lot of school. He managed to keep up with his grades but on every report card it said he would be doing better if it weren’t for the absences. He worked really hard at keeping a solid B average but it was difficult on his life. It was difficult on ours because I would miss days of work and I don’t work full time so I would miss a whole day’s pay. That all worked out, but I would have to call out of work, drive him in, and of course the co-pay, so it was getting pricy. He went in for that procedure more than once.
- Mother of Dylan, age 16